Research

Welcome to the Informed Medical Decisions Foundation library of research studies related to the topic areas we care about most. In our collection you will find the following resources:

  • Shared Decision-Making® Program Research: This resource includes studies that evaluate and test our suite of decision aids developed in conjunction with Health Dialog.
  • Foundation Perspectives: This resource includes succinct white papers, written by our senior scientific advisor, Floyd J. Fowler, PhD, that look at common questions about the shared decision making process and provide our best answers based on the current available research.
  • Funded Research: This resources includes summaries of past Foundation-funded research projects that evaluate various aspects of medical decision making. In our report, Foundation-funded Research Highlights (PDF 811 kb), we provide an overview of the major contributions to shared decision making research.

Our Library

Below you will find samples of our most recent acquisitions, grouped by resource type.

Shared Decision-Making® Program Research

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Introducing Decision Aids at Group Health was Linked to Sharply Lower Hip and Knee Surgery Rates and Costs

Arterburn D, Wellman R, Westbrook E, et al. Introducing decision aids at Group Health was linked to sharply lower hip and knee surgery rates and costs. Health Aff. 2012 Sept 4;(9):2094-104.…  Continue reading
Posted in Cost, Decision Aid Effectiveness, Patient Decision Aids, SDM Implementation | Tagged arthritis, David Arterburn, decision aids, Group Health, Health Affairs, health care cost, hip osteoarthritis, informed decisions, knee osteoarthritis, surgery Permalink

Feasibility and Acceptability of a Decision Aid Designed for People Facing Advanced or Terminal Illness: A Randomized Trial

Matlock DD, Keech TA, McKenzie MB, et al. Feasibility and acceptability of a decision aid designed for people facing advanced or terminal illness: a randomized trial. Health Expect. 2011. [Epub ahead of print]. Read the abstract.  Continue reading
Posted in Patient Decision Aids | Tagged decision aids, Shared Decision-Making® programs, terminal illness Permalink
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Informed Medical Decisions Foundation Perspectives

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Patients Want to be Involved

Imprecisely worded and poorly designed survey questions have caused considerable confusion about the degree to which patients want to be involved in medical decisions. When questions are worded such that patients understand that they are not being asked to make decisions requiring technical clinical information and particularly when respondents have been given basic information about the decision they are facing, survey data are extremely consistent; most patients want to be informed and to play a direct and active role in the decision making process.…  Continue reading
Posted in Patient Involvement | Tagged patient engagement, shared decision making Permalink

Striving for Balance & Fairness

One of our primary goals at the Informed Medical Decisions Foundation is to strive for balance and fairness when helping patients understand medical decisions. At the core of our organization is the conviction that the best medical decisions are made when patients are well informed and active participants in the decision making process. A balanced presentation gives patients the best chance to work in partnership with their providers and make the decision that will serve them best.…  Continue reading
Posted in Decision Aid Components, Patient Decision Aids | Tagged decision support, evidence-based medicine Permalink
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Informed Medical Decisions Foundation Funded Research

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Enhancing Comprehension of Graphically Presented Medical Data: Designs to Help People with Low Graph Literacy

In order to make informed medical decisions, patients need to understand information about risks, benefits and drawbacks of different treatments. However, research on health literacy and medical decision making has shown that patients in different cultures have severe problems grasping a host of numerical concepts that are prerequisites for understanding health-relevant statistical information. Graphical displays -- including line plots, bar charts or icon arrays -- often facilitate the communication of numerical information, and can help overcome some of these difficulties.…  Continue reading
Posted in George Bennett Grants, Literacy and Numeracy, Risk Communication | Tagged data displays, graphic comprehension, graphical displays, health care, health literacy, informed decision making, low graph literacy, medical decisions, patients, shared decision making Permalink

Effects of Decision Ambiguity on Shared Medical Decision Making

To evaluate the impact of ambiguity on shared medical decision making using scenarios on future medicine and unconventional medicine. To develop and test a decision aid tool to help patients and physicians understand ambiguity and to encourage a shared medical decision making process that is applicable to ambiguous decisions that involve future medicine and unconventional medicine. …  Continue reading
Posted in George Bennett Grants, Investigator-Initiated Research, Patient Involvement, SDM Implementation | Tagged decision aids, shared decision making Permalink
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