- Primary Investigator:
Hilary L. Bekker
- Primary Location:
University of Leeds, Leeds Institute of Health Sciences (LIHS)
- Project Type & Year:
Special Project 2010
This research aims to assess the effectiveness of component parts within patient decision aids (pDAs) on patient’s informed decisions about dialysis modality.
Research question 1: How does the presentation of options affect patients’ decision making? Clearly representing the decision problem for patients is a key component part of pDAs. We will compare the impact of presenting dialysis modality details in a linear structure by option as seen in most service information versus having details structured by attribute (home/hospital; night/day; patient/carer/professional operator; toxin removal method).
Research question 2: Do different value clarification techniques change differentially the way people evaluate dialysis modality details? Techniques to help patients reason about the relevance of the decision consequence to them are a component part of pDAs. We will compare the impact of three different techniques (rating scale, ranking of options, linking with quality of life) on the dialysis modality information evaluated during decision making.
Research question 3: Can narratives be used to facilitate the decision making process? Guiding patients through the mechanics of making a decision well is a component part of pDAs. We previously found narratives of expert patients’ treatment experiences adversely influenced novice patients’ informed decision making. We will compare whether a narrative of how to reason about dialysis modality details delivered by either a patient or health professional impacts on decision making, over and above the routine presentation of information.
Research question 4: Does delivering pDAs by paper or computer differentially affect people’s decision making processes and outcomes? This research will be carried out using paper and computer based versions of the study materials.
Research question 5: Are the decision-making processes and outcomes of patients and non-patients influenced in the same way by the pDAs’ component parts? This research will be carried out in two populations, staff and students from UK universities, and patients with chronic kidney disease.