Tag Archives: breast cancer

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UCSF Breast Cancer Decision Support Inspires Edinburgh

Inspired by Dr. Jeff Belkora's work with shared decision making at the UCSF Breast Care Center, Dr. Belinda Hacking brought a similar model to Edinburgh. Macmillan Cancer Support provided Belinda and her team with a generous grant for a pilot study integrating decision support into medical care for breast, prostate, brain and colorectal cancer. Preliminary results have shown that patients believed the intervention had a positive effect on their experience. Continue reading
Posted in Current News | Tagged breast cancer, cancer, decision support, health care, patient perspective, shared decision making | Permalink
Harriet Gudenburr

Commemorating a Career Dedicated to Shared Decision Making in Breast Cancer Care

In 1960, Harriet Gudenburr embarked on a nursing career that would span more than five decades and would touch the lives of hundreds of patients. In September 2011, Harriet retired from her position at Allegheny General Hospital where she had established the Informed Decision Making program at the hospital's Breast Care Center. In partnership with the Informed Medical Decisions Foundation, Harriet and her team ensured patients were provided shared decision making (SDM) opportunities on their breast cancer journey. Continue reading
Posted in Current News | Tagged breast cancer, health care providers, informed decisions, patients, shared decision making | Permalink

Shared Decision-Making® Program Research

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How does A German Audience Appraise an American Decision Aid on Early Stage Breast Cancer?

Albrecht K, Simon D, Buchholz A, et al. How does a German audience appraise an American decision aid on early stage breast cancer? Patient Educ Couns. 2011;83(1):58-63. Read the abstract.
Posted in Patient Decision Aids | Tagged breast cancer, decision aids, Shared Decision-Making® programs | Permalink

Impact of Decision Aids in a Sustained Implementation at a Breast Care Center

Belkora JK, Volz S, Teng AE, et al. Impact of decision aids in a sustained implementation at a breast care center. Patient Educ Couns. 2011 Jun 10. [Epub ahead of print]. Read the abstract. 
Posted in Patient Decision Aids, SDM Implementation | Tagged breast cancer, decision aids, shared decision making implementation, Shared Decision-Making® programs | Permalink

In The News

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[Reuters Health] Most Women with Cancer Want a Role in Decisions

"I think it's not so surprising that the actual decision making tended to be more doctor-directed than the patients wanted," said Dr. Michael Barry, president of the Foundation for Informed Medical Decisions Making, who was not involved in this study.
Read the full-text article.
Tagged breast cancer, decision making, Michael J. Barry, Reuters Health, shared decision making | Permalink

[The Boston Globe Daily Dose Blog] 1 Million Women 'Overdiagnosed' with Breast Cancer Due to Mammograms, Controversial Study Suggests

Others, however, defended the researchers' conclusions, saying the study verifies research data that's been published in other countries. "They just took a different way of looking at the likely benefits of mammographic screening and the overdiagnosis rate," said Dr. Michael Barry, president of the Informed Medical Decisions Foundation.
Read the full-text article.  
Tagged breast cancer, breast cancer screening, Gilbert Welch, mammograms, mammography, Michael J. Barry, NEJM, overtreatment | Permalink

Informed Medical Decisions Foundation Funded Research

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Developing Measures of Decision Quality

The field tests in the last year show that the items on the whole are performing as intended, and patients find the surveys acceptable and feasible. There is growing interest in the research community to use these instruments, and we have been exploring interest in clinical community to extend their use. Continue reading
Posted in Decision Quality, Directed Research, Patient Knowledge, Patient Preferences | Tagged breast cancer, colorectal cancer screening, decision quality instruments, depression, herniated disc, hip osteoarthritis, knee osteoarthritis, menopause, MGH | Permalink

An Assessment of Shared Decision Aids in Latinas with Breast Cancer

Our primary hypothesis is that participants who utilize the “Early Breast Cancer: Chemotherapy and Hormone Therapy are They Right for You?” (translated) DA in shared decision- making will experience more value-congruent decisions than the control group. The specific aims of the proposed work are to: 1) determine the utility of the DA in decision-making; 2) evaluate satisfaction with the DA; and 3) assess and compare the participant’s satisfaction with and value-congruence of her decision after exposure to the DA with those of the control group. Continue reading
Posted in Decision Aid Effectiveness, Investigator-Initiated Grants, Investigator-Initiated Research, Patient Decision Aids, Patient Involvement, Special Populations | Tagged breast cancer, decision aids, Latinas, shared decision making | Permalink

Informed Medical Decisions Foundation Demonstration Site

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DHMC_web

Dartmouth-Hitchcock Medical Center

Dartmouth-Hitchcock Medical Center (DHMC) is comprised of physicians, specialists and other providers working together at different locations to meet the health care needs of patients in northern New England. The Center for Shared Decision Making (CSDM) at DHMC, opened its doors in 1999 as the first center in the U.S. to be dedicated to shared decision making, and became a Foundation funded primary and specialty care demonstration site at that time. True pioneers in the shared decision making arena, DHMC continues to perfect the process of providing access to decision aids and decision support to patients as a routine process of care. Continue reading
Tagged breast cancer, decision aids, DHMC, orthopedics, prostate cancer, radiation, shared decision making, Shared Decision-Making® programs, urology | Permalink
UCSF_breast_web

UCSF Breast Care Center

The University of California San Francisco (UCSF) Breast Care Center (BCC) is a high volume specialty clinic providing multi-disciplinary care in a National Cancer Institute-designated Comprehensive Cancer Center. Eight medical oncologists and four surgeons, among dozens of specialists, providers and staff conduct more than 1,000 consultations annually, caring for more than 600 newly diagnosed patients each year. The Breast Care Center at UCSF became a Foundation funded specialty care demonstration site in 2005 in order to offer their patients a unique type of decision support and guidance along their journey. Continue reading
Tagged breast cancer, decision aids, decision support, health care, shared decision making, Shared Decision-Making® programs, treatment for breast cancer, UCSF | Permalink

25 Silver Keys to Foundation History

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Foundation History: Key 1

LaserDisc2

Our early decision aids were created on Laser Videodiscs, seen above. These Laser Discs are about the size of a LP record and have to be played on special player that typically cost around $8,000. While the disc may look fairly primitive, in reality it was very advanced and innovated. Like computerized decision aids today, you were able to customize content based on each person, and input data to better assist in making decisions. The disc above is a Treating Your Breast Cancer decision aid, aimed at helping women choose the best course of treatment for them. Our very first decision aid was a Benign Prostate Hyperplasia aid (BPH), created in 1990 in VHS format. We have come a long way since laser discs and VHS, but continue to work hard at creating decision aids to help people make informed health care decisions.
Tagged Benign Prostate Hyperplasia, breast cancer, decision aids, Laser Videodiscs, medical decisions, VHS | Permalink