Inspired by Dr. Jeff Belkora's work with shared decision making at the UCSF Breast Care Center, Dr. Belinda Hacking brought a similar model to Edinburgh. Macmillan Cancer Support provided Belinda and her team with a generous grant for a pilot study integrating decision support into medical care for breast, prostate, brain and colorectal cancer. Preliminary results have shown that patients believed the intervention had a positive effect on their experience.
In 1960, Harriet Gudenburr embarked on a nursing career that would span more than five decades and would touch the lives of hundreds of patients. In September 2011, Harriet retired from her position at Allegheny General Hospital where she had established the Informed Decision Making program at the hospital's Breast Care Center. In partnership with the Informed Medical Decisions Foundation, Harriet and her team ensured patients were provided shared decision making (SDM) opportunities on their breast cancer journey.
Women with early-stage breast cancer face a multitude of decisions. The quality of a decision can be measured by the extent to which the treatment reflects what is most important to an informed patient. Reliable and valid measures of patients' knowledge and their goals and concerns related to breast cancer treatments are needed to assess the decision quality.
The field tests in the last year show that the items on the whole are performing as intended, and patients find the surveys acceptable and feasible. There is growing interest in the research community to use these instruments, and we have been exploring interest in clinical community to extend their use.
Posted in Decision Quality, Directed Research, Patient Knowledge, Patient Preferences
Tagged breast cancer, colorectal cancer screening, decision quality instruments, depression, herniated disc, hip osteoarthritis, knee osteoarthritis, menopause, MGH
Our primary hypothesis is that participants who utilize the “Early Breast Cancer: Chemotherapy and Hormone Therapy are They Right for You?” (translated) DA in shared decision- making will experience more value-congruent decisions than the control group. The specific aims of the proposed work are to: 1) determine the utility of the DA in decision-making; 2) evaluate satisfaction with the DA; and 3) assess and compare the participant’s satisfaction with and value-congruence of her decision after exposure to the DA with those of the control group.
The Breast Cancer Initiative (BCI) was designed to promote the dissemination and implementation of breast cancer decision aids across a range of clinical settings, and to learn about the factors associated with continued use of decision aids in routine medical care. Through a joint effort with Health Dialog established in 2002, the Foundation funds this initiative to support shared decision making (SDM) in breast cancer centers across the United States.
Dartmouth-Hitchcock Medical Center (DHMC) is comprised of physicians, specialists and other providers working together at different locations to meet the health care needs of patients in northern New England. The Center for Shared Decision Making (CSDM) at DHMC, opened its doors in 1999 as the first center in the U.S. to be dedicated to shared decision making, and became a Foundation funded primary and specialty care demonstration site at that time. True pioneers in the shared decision making arena, DHMC continues to perfect the process of providing access to decision aids and decision support to patients as a routine process of care.
A diagnosis of metastatic breast cancer affects all aspects of women's lives -- family and friends, work, play, finances and faith. To help women cope with this diagnosis and all its implications, the Informed Medical Decisions Foundation has developed a Shared Decision-Making® program called Living with Metastatic Breast Cancer: Making the Journey Your Own.