Recently two of our staff members, Vickie Stringfellow, research methodologist and Megan Bowen, implementation manager, gave an informative webinar about how we collect patient-reported measures. They discussed it in relation to our demonstration sites and how exactly all of the sites went about gathering and reporting data via the program DatStat Illume.
Our shared decision making demonstration sites first launched 4 years ago (2009), as an opportunity to study how our decision aids (DAs) worked in clinical settings, how implementation was best approached and how it benefitted patients. Megan describes the purpose of the sites as a way “to show that shared decision making can be moved to mainstream and integrated into clinical pathways.” Each demonstration site collected data from patients who viewed the DAs which we then analyzed.
Figuring out how to collect and analyze all this data was a challenge at first, as there were many different DAs with unique surveys at all 10 demonstration sites. A streamlined method was developed and we were able to learn a lot from the data we collected. We found that over 75% of patients thought the DAs were either extremely or very useful, and that the majority of the patient’s who were undecided about treatment options before viewing the aid were able to make a confident decision after viewing the aid. These findings further support our belief that participating in shared decision making and involving patients in their health care decisions is crucial.
Four years later, we are no longer providing funding to the sites, but despite that, all of the demonstration sites continue to practice shared decision making and use DAs.
If you are interested in learning more about how we collect this data, you can watch Meg and Vickie’s full presentation here.