In April 2015, President Obama signed into law the Medicare Access and CHIP Reauthorization Act of 2015, simply called MACRA. Unlike the Affordable Care Act (“ObamaCare”), the MACRA bill had rare, overwhelming bipartisan support, with a final vote of 392-37 in the House and 92-8 in the Senate.
Read more about how patients and families can benefit under MACRA
I recently returned from the American College of Physicians (ACP) annual meeting in Washington, DC. The ACP is the largest medical specialty organization in the world, with 147,000 members spanning the spectrum from medical students starting off on their careers to seasoned clinicians in practice and medical school professors.
Read more about the ACP’s commitment to patient-centered care
Dr. Michael J. Barry, president of the Informed Medical Decisions Foundation and Susan Edgman-Levitan, Foundation board member, are co-authors on a New England Journal of Medicine Perspectives article published today. In the article “Shared Decision Making – The Pinnacle of Patient-Centered Care,” the authors explain that although advances in medicine continue to improve outcomes for patients as a whole, they can also leave patients and their families feeling disconnected from the decision making process and overwhelmed by their options.
Read more about why shared decision making is the pinnacle of patient-centered care
141 attendees…290 Twitter participants…1,599 tweets…3,806,868 Twitter impressions…These numbers represent the impact of the recent Summer Institute for Informed Patient Choice (SIIPC) conference, held June 25-27 in Hanover, NH. Aligning with this year’s theme, “The legal and ethical implications of keeping patients in the dark,” conversations both in the conference room and “virtual” centered on informed patient choice, shared decision making, and health care reform. The passion for keeping patients informed could be seen, felt, and heard near and far.
Read more about the need for keeping patients informed
We are now more than 2 months into our merger with Healthwise, and we’ve made enormous progress over that time. A spirit of intense collaboration permeates the combined organization as we develop strategic and operational plans for the months and years ahead.
Read more about the Foundation's new focus on research and advocacy
The American College of Cardiology (ACC) has been a leader in engaging patients. The College launched the patient centered website, CardioSmart.org, in 2008 and Dr. Alfred Bove, in his presidential address, declared 2009 as "The Year of The Patient". As such, the College established a standing committee on patient centered care understanding that the “Year Of The Patient” would remain the focus of the ACC forever. One main emphasis of this committee was to explore and implement shared decision-making (SDM) in patients with cardiac disease.
Read more about "The Year of The Patient"
When and how did you first become interested in shared decision making? Describe your ah-ha moment. In the 1980s, when, through outcomes research, we learned that shared decision making was the remedy for unwarranted variation in prostate surgery.
Read more about Jack Wennberg's vision for shared decision making
What prompted you to become engaged in your health care? Tell us your "ah ha" story. I had a friend once who's mother was having chronic back pain; she was a swimming champion back in the late 1970's, early 1980's. She went to see a doctor a few times about the problem and the doctor told her she HAD to get an operation. Years later it comes out that she could have done physical therapy or received an epidural instead of the operation, which made her situation worse as the years went on. Also working and knowing what I know now, it's a NO BRAINER to be an engaged patient about your health care.
Read more about Ra'Shaun's advice for engaging in your health care
What prompted you to become engaged in your health care? Tell us your "ah ha" story. Even though I am only 15, I have a lot of healthcare experience. I was diagnosed with a rare autoimmune disease called Juvenile Dermatomyositis at the age of 11. Over the years, we have faced many decisions that had to be made about my care. In January of this year, I was hospitalized for meningitis that I developed after getting an IV treatment. After four days of getting little sleep due to a horrific headache and high dose steroids, I was frustrated by two main things.
Read more about Morgan's advice for engaging in your health care
What prompted you to become engaged in your health care? Tell us your "ah ha" story. I wouldn’t say that I had an Ah-Ha moment, rather a gradual awakening to the facts that health care was becoming big-business rather than care and nurturing. I was always fortunate to have doctors who were very open-minded and not part of the pharma-pushing industrial complex so we were always able to discuss alternatives for any issue that might come up.
Read more about Jeff's advice for engaging in your health care